漂亮女孩(有图有真相)

2011年5月21日 | 标签:

床位上有个小病号,住了快两个月了,就是出不了院,因为她不会吃奶,只能每天通过鼻饲管往她胃里灌奶

一个两个月大小的孩子是很可爱的,她会和你有目光的交流,会盯着你看,你挪一下头,她的漂亮眼睛就会跟着转;而且她还会渴望得到你的拥抱,估计她已经认识了我,因为我有空时总是抱她。我认为我的这种行为过份了一点儿,对那些没有得到我拥抱的孩子而言。这个世界有时确实是不公平的,为什么长的漂亮的总会得到更多的关注

看上去,她和正常孩子之间没什么差别,只不过多插了一根管子。其实,她有严重的缺陷。只不过这缺陷躲了起来,你看不到。比如,她患有腭裂,就上腭没发育好,有个裂口,通往鼻腔。这个裂口是长不好的,必需手术修补,甚至需要多次手术才能完成。但这对她而言这又是很幸运的了,因为她的嘴唇是完整而且好看的,要是唇裂,那么再好的整形技术也会留下修补的痕迹

这个小缺陷对她来说不构成什么威胁,她体内还有个缺陷是致命的——她的心脏有三处缺损:房间隔缺损、室间隔缺损、动脉导管未闭。她闹的厉害时,就会发紫,因为这时她的没有氧合的静脉血会通过缺损进入动脉系统。有的心脏小缺损是可以长好的,但她这种情况可能没有自愈的希望,也就是说她要活下去就必需接受手术,否则生长发育受影响,甚至夭折

以前的心脏手术是要打开胸腔和心脏,进行修补,损伤很大。而目前的技术,可以通过外周静脉将修补装置送进心脏,然后像伞一样的撑开,从而堵住缺口,方便多了。感谢这些技术以及发明者,他们救活了很多人

~~~~~~

大家都公认她是个小美人,眼睛虽然不大,但很有神,尤其是那长长的有着优美弧度的睫毛,漂亮极了,那可不是用钳子夹出来的,那是天生的

小女孩小时候漂亮,长大了就不一定好看了,男孩则反之。我见过她母亲,比较普通,但眼睛还是很有神的。她的母亲是一点点的知道她的缺陷的,家人不敢一下子告诉她,怕她承受不起,这可以理解。前几天,我们之间通电话,我问她想不想来看看小孩,她说当然想啦。今天是周末,我上班,科室人少,领导们都不在,就给她拍了几张照片,刚刚发到她母亲的邮箱了,想必她们家人会很高兴的

再说说她的爸爸。感觉是个粗人,而且职业有点意思。当初收住院时,他一下给了3个手机号码,还说这3个手机在不同的时间段打开,联系时要一个个试着打。我问这怎么回事啊?她的外婆在旁边说:她爸爸的职业保密,不能对外人说。当时我猜,她爸不会是个国安吧

当我把这些缺陷都告诉她爸时,她爸傻了,因为父母年龄都大了,要个孩子不容易,而且母亲还有代谢性疾病——甲状腺功能减低,这种病往往会伴有抑郁。当时她爸说了一句话我忘不了:千万不要告诉她妈,听了这消息会挺不住的。老婆就这一个,孩子还能再生,实在不行就一下子了断,跟她再见吧。我听后一惊,估计是个心狠手辣的国安,心想:有你这样的父亲吗?你想再见就再见的成吗,我们会让她活下去的。但后来细想,这话虽然残酷,但有一定道理。可见夫妻之间还是有感情的

没想到这孩子生后经历几次危险后,也挺了过来,一天天的长大了,就是长的有点慢,但越来越好看

2个星期前的一个夜班,我把他家人都约来了,让她们看看这个漂亮小孩,母亲情绪倒很平静,父亲在一旁眼泪汪汪

  1. 行走的鸽子
    2011年5月21日21:27

    她笑了。
    真是个漂亮女孩呀。
    如果以后她的器官还没长好还不能修复,每天都活在肉体的痛带来的无限痛苦中,那么她自己可以选择离开还是不离开怎么会是残忍,活着就不残忍么。
    祈祷她早日康复出院。

  2. 江岸送别
    2011年5月22日15:12

    被你的文字感动了…恬淡及宁静,可以想象那是多么精致的心灵啊

  3. yanhu
    2011年5月22日20:43

    @行走的鸽子

    确实是笑了,正巧被我拍下来了,看了她笑我也很高兴。昨晚给她家人发了照片,今早她妈就发短信给我,提出想来看看,正好今天我上班,就让她父母来了

    可惜的时,来看的时侯,她正在睡觉,没睁开那漂亮的眼睛。父亲在旁看的嘴“啧啧”直响,对他妻子说:这小孩怎么这么漂亮呢

    心脏外科医生说了,一般要等到6个月,体重至少5kg,做手术的把握才会大

    整形外科医生说了,等心脏问题解决了,我们才能修补腭裂

    落在我们身上的任务就是锻炼她吃奶,让她的体重慢慢增长,让她符合做心脏手术的条件。虽然快2个月了,今天的体重才2985g

    路还有点长,但感觉应该没什么事,因为她的父母接纳了她

  4. yanhu
    2011年5月22日20:49

    @江岸送别

    其实是很普通的文字,天天在那样的环境中工作,面对的都是些焦急的家长,我有时也被他们感动

    “精致的心灵”谈不上 ^_^

    但我还是比较细心的,那也是被训练出来的,否则容易出错

  5. bjautumn
    2011年5月23日00:06

    为什么我在每一个小孩子的笑脸里都能看到自己孩子的影子?有时候甚至是一个小动物也觉得和自己宝宝神似,这是什么道理呀?
    宝宝很漂亮,好文气的.

  6. xiaobao
    2011年5月23日00:38

    天使。好可爱啊,我抱一下咯

  7. 民老头
    2011年5月23日18:21

    yanhu,我这几天身体不舒服,在家休息,今天去看病,真受罪,医院的管理太糟糕了,公立医院都是如此。还是穷,就这么点资源,要为那么多人服务。真奇怪,为什么还有医学院的学生找工作难?明明医务人员是严重短缺呀。有钱也可以不受罪,边上有特需部门,不排队,环境好,服务好,技术好,就是贵。我觉得这样也不错,多收10倍的钱,可以补贴到普通部门,增加总量的供给。不可能要求所有大夫都像你这么有爱,每个行业里,平均的道德水准都差不多。还是制度设计有问题,导致目前那么多矛盾。
    有健康,什么什么都不怕。谢谢你,我觉得你就是上帝派来的天使。

  8. yanhu
    2011年5月23日19:41

    @bjautumn

    你说的我也有感觉,那些还在吃奶的小人、小狗、小猫……都是很可爱的

    抱小人的感觉最好,尤其是几个月大,稍微能交流一点的孩子,不管是不是自己的

  9. yanhu
    2011年5月23日19:45

    @xiaobao

    就抱一下?那可不行

    你那是一过性的新鲜

    吃喝拉撒全得管,晚上还不让你睡觉,时间长了,你就烦了

    总有一天你会知道的

  10. yanhu
    2011年5月23日20:03

    @民老头

    可能还是中国的人口太多了,另外还有医疗体制问题,大量的医疗人才集中在大型医院,而小医院虽然就诊环境好一些,但有点条件病人还是不愿意去啊,都是冲着大医院的实力来看病的

    总觉得我并没有多做了什么,很多是应该做的。有的时侯也想坏一下,被你们这么一说,不得不对自己高一点要求

  11. Nana
    2011年5月24日11:06

    如果她是我的女儿,我不愿意医生把这些拍下来放在网上。。。

  12. yanhu
    2011年5月24日12:48

    @Nana

    这就涉及一个很难解决的问题,在网上贴出一个人的照片是否要经过当事人或监护人的同意(尤其是暴露面部的)。理应是要获准的,无论是出于什么目的

    出于赢利目的的更要慎重

    但事实上,这很难,尤其是新闻类的图片,总不能要照片上的每个人同意后才能刊出,似乎这类图片享有豁免权。比如那副著名的图片《上访者》,理应没经过那位老汉的同意,而作者李晓斌通过该照片获得的名和利,也无法分出一些给照片上的老头了

    在一些学术交流上,医生可以公布病人的病情,或病情需要的照片,如果涉及面部,一般要将眼睛覆盖。可以提及职业,但不能公开姓名和单位。现在还没有规定医生之间探讨病情时需要经过病人的同意,其实病人也可提出这样的要求:只有我的医生才能了解我的病情,不允许在其他非医疗场合(甚至医疗场合)讨论我的病情

    回到我的这篇博客,如果严格的说,有些站不住脚,利用职业之便在非医疗场合说出了病情还贴出了照片,甚至推测了她爸的职业。好在我的本意是展示这个孩子的漂亮和那种无意识的乐观,没有一点故意揭露隐私的目的

    另外,我对我博客的流量还是很清楚的,最多两、三百,如果我是韩寒,就会倍加小心的

    最后,谢谢你的提醒

  13. 欣燃
    2011年5月24日23:53

    你拍这么多表情,真让人一张张看着,愈加崩溃下去……

  14. yanhu
    2011年5月25日08:16

    @欣燃

    其实你的那篇“太阳村”的内容也挺让人揪心的

    也许我们的视角不同,我看到这孩子倒没觉得“崩溃”,只是看到她会朝我们笑了,有点难过。得赶快让她出院,回到父母身边啊

    《DNA》3还没贴出来,实在抱歉,今天下午就要参加讲课比赛了,把这件事弄好,我就贴

  15. 朗玛
    2011年5月31日11:19

    不知道为什么,看了几次,但一看到这句:千万不要告诉她妈,听了这消息会挺不住的。老婆就这一个,孩子还能再生,实在不行就一下子了断,跟她再见吧。 就忍不住泪盈满眶。

  16. yanhu
    2011年6月1日16:43

    @朗玛

    当初写这句话,我是很随意的,她父亲说这句话时,好象也没多想

    后来她父亲看了几次女儿后,还是很喜欢的

    这事碰到谁头上,都会很痛苦的

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